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Tighe Family: Benefiting Cure JM in honor of Spencer!

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This holiday season, give children hope for a brighter future.

In September 2017, Spencer was diagnosed with Juvenile Dermatomyositis.  He was 4 years old when we noticed symptoms.  It became VERY difficult to do daily things like walk, sit on the ground, walk up steps or even roll over in his bed.  We were thankful to get a diagnosis and to get him started on medicine that would relieve his pain.  We continued treatment of Steroids and Methotrexate, eventually weaning off the steroids October of 2019!  

Spring of 2020 he began to flare up.  We had trouble getting it under control but by November 2020 his new regimen included monthly IVIG at Akron Children's, back on daily prednisone (low dose) and a weekly shot of Methotrexate AND Orencia done  at home.  He is still currently on this treatment and we are happy to report he is stronger than EVER right now!  We are so thankful for the medicine that is making him feel so good but will be anxious to get him medicine free one day.  

JDM is extremely rare effecting only 2/3 children out of a million and does not receive government funding for research to find a cure!  As a parent that is a hard reality.  It is only by your/our donations that we can support our doctors to help them research medicine with less side effects and possibly a cure!  We are grateful for any big or small donation!


Thank you,

Jim, Becca, Lydia and Spencer


Your gift will be matched dollar-for-dollar by the Coffey Family Match!

  • Click Donate Now to make an online gift.
  • Checks can be made out to Cure JM and mailed to Cure JM, P.O. Box 45768, Baltimore, MD 21297.

 

Every gift helps children battling Juvenile Myositis. Juvenile Myositis turns a young life upside down. The immune system loses control and the body attacks itself. It can steal a child's ability to walk, play, or even swallow.

 

Right now, there are no FDA-approved treatments or a cure, but we can change that!

 

With your support, Cure JM is leading the way in groundbreaking JM research. There are now more new treatments in development for JM than ever before. 

 

We are optimistic that several of the drugs we have in the research pipeline will improve the lives of our children:

·One drug is a possible steroid replacement—a new steroid with far fewer side effects.

·Another has already shown improvement in muscle strength and skin conditions in JM patients. 

·Both of these drugs are on their way to clinical trials in JM patients.

 

This extraordinary progress is made possible by friends and family like you!

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Achievements
TeamRaiser Achievement Badge
You Raised $5,000
You are a Hope Hero. You are giving hope for better treatments, a brighter future, and a cure.
Personal Progress:
of Goal
$8,965 Raised
$10,000.00
Fundraising Honor Roll
211
$50
Alex Cooper
$51
Andrew J Martin
Anonymous
Anonymous
Anonymous
$100
Anonymous
$51
Avalon Riebe
Cam Lakia - we love you Spencer!
$200
Cheri & Thomas Weaver
$25
Christine Brinks
$500
Cindy Hawke
$100
Coffey Family Match
$216
Coffey Family Match
$200
Coffey Family Match
$175
Coffey Family Match
$100
Coffey Family Match
$100
Colleen Fairhurst
Dave Kinsey. You're a Myositis Warrior Spence!
$100
Frances Vidnovic
$25
From: Ivan & Anna Mernik You are our Superhero Spencer !!
$100
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Grandad and Mammy
Harriet Sharkey-Ingoglia
$300
Jaclyn Kinsey
$25
Jim & Trenna Tighe
Jodi Rohrer. Spencer Strong!
$100
Joe, Ellis, Bailey- stay strong Spence!!
$50
Kalt Manufacturing Company- way to go, Spencer!
$257
Karen Bright, Praying for Spencer and a cure!
$50
Katherine Kinsey
$51
Keep fighting Spencer! I am always in your corner. Tammy Rhodes
$25
Keep shining bright Spencer!!
$25
Liam Surace
$40
Logan Charles
$50
Love you Spencer! Aunt Kerry & Uncle Scott
$200
Mason & Khloe Ventura! We all love you Spencer!!!
$50
Megan Tinl and Matt Yandek
Mr. David Polcyn
$51
Mr. Joseph Paskvan
$50
Nancy Rudolph
$50
Nora & Graham
$100
Overlook Hill Farm
$100
Rachel Hooser
$103
Robert Leget
$25
So proud of you
$100
Spencer, You and Lydia are our heroes!
$51
Suzanne Tighe
Suzie Neff
$25
Terlop family
$100
The Boggs family- we love you guys!!
$25
The Dunmire family
$51
The Jules Family
$51
The Martin Family
$350
The Wojciak's
$100
Tim & Jean Wadle
$51
Tim & Jean Wadle Jesus is with you Spencer
$103
Tim & Maria Tighe
Turner's
$100
Wagar Family
We are so inspired by and proud of you Spencer! Xoxox Daschel, Liam and Kanya
$206
We are with you Spencer! Bill Hill
$51
We Love You Spencer ! from Brigid and Dennis
$100
We love you, Spence and the rest of the Tighe family!
We've been down a similar road. Our love to you and your family and especially your son . Cullin's
$100
You got this Spence!
$25
You got this Spencer
$103
You rock Spencer
$100

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Cure JM Foundation