Join Us for Walk Strong to Cure JM
Last December, 2018 my daughter Avery was diagnosed with a rare autoimmune disease that only affects 3 in a million children. Dermatomyositis (JDM for short) is an inflammatory disease that affects children's muscles, skin, and blood vessels. Every day is a new adventure because we never know how her body will react to the disease that day. On a good day Avery is able to walk down the stairs on her own, she is able to write and maybe even able to play with her brother or sister without getting fatigued after 20 minutes. On a good day she doesn't need help sitting down or getting up from the floor. On a good day Avery can get out of bed on her own and dress herself. These good days have been happening maybe once or twice a week but we are hopeful that the good days will happen more often with the continuing treatment she receives through her doctors at Mary Bridge Children's Hospital.
This disease has turned our lives upside down. There are children with JDM who unfortunately do not have access to a good Children's Hospital and/or doctors. It's horrible to watch your child in pain and not be able to fix it! That is why it is SO important to get information out there and bring awareness to this disease.
Walk Strong to Cure JM Seattle is a chance to help fund research by donating, or just coming to support the kiddos and their families who struggle with this on a daily basis.
I'm participating in Walk Strong to Cure JM. All proceeds benefit Cure JM Foundation, a non-profit dedicated to finding a cure for Juvenile Myositis, a life-threatening disease which causes the body’s own immune system to attack healthy cells and tissues. It can affect virtually any system of the body, the heart, lungs, skin, muscles, and more. And there is no cure....YET!
But with support from friends and family like you, we’re getting closer to better treatments and a cure.
With this continued great support from families and friends we were able to fund research at 20 prestigious research institutions, helping advance JM research at an unprecedented pace!
Your gift now will keep that momentum going. Every donation goes straight to Cure JM, and since inception over 90% of all funds raised go directly to research.
Join the team and fight against JM/JDM today!
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